The support of people with profound and multiple learning disabilities (PMLD) does not gain the same level of discussion and exposure as for other types of disability.
CMG is aiming to change that with a determined focus on ensuring the needs of people with PMLD are better understood and met.
AS CMG support close to 100 adults with profound and multiple learning disabilities (PMLD) we are passionate about ensuring we provide the best possible health, emotional and social care support to each individual. Support is provided in ordinary housing, in the heart of communities, with the environment specially adapted to meet their physical and mobility needs.
A key concern for us in CMG is that we hear all too often of people with profound and multiple learning disabilities (PMLD) living in clinical, remote and large services, often many miles from the family home. This issue, while highly recognised as inappropriate for people presenting with ‘challenging behaviour’, is not discussed or challenged in the same manner when it comes to people with profound and multiple disabilities (PMLD).
Michael Fullerton, Clinical Director, and other members of CMG’s Clinical Team are proactively engaging at a national level to promote excellence in support and services for people with profound and multiple learning disabilities (PMLD).
The most significant nationally focused work is the development of new Service Standards for children and adults with profound and multiple learning disabilities (PMLD). Michael is co-leading on the launch of these new standards for service providers, and these will be launched at a National PMLD Conference on the 24th November at Manchester Conference Centre. The Conference, ‘Raising the Bar’, will also bring together key leading figures in the world of profound and multiple learning disabilities. Delegates are attending from all parts of the UK, Southern Ireland and the Channel Islands.
Katie Reid (Healthcare Facilitator )and Erren Wheatland (Clinical Nurse Trainer) will be talking at the conference about the application of the Standards in a social care setting.
In addition, Michael and Katie are engaged in the National Postural Care Strategy Group, led by Changing Our Lives. This group are developing a set of postural care strategies which will be launched in the spring of 2018.
Leading the way in terms of ensuring a skilled workforce, CMG run an Accredited PMLD Qualification (in partnership with Disability Learning) to support staff and soon to roll out an Accredited Course on Postural Care following Train the Trainer’ Training with Simple Stuff Works.
Michael has also joined the editorial team of the PMLD Link journal, the only PMLD specific publication in the UK.