CMG’s STOMP event – ‘The over medication of people with learning disabilities is a breach of their human rights’

14th June 2017 1 Comments

CMG’s STOMP Best Practice Guide

I was very proud yesterday to be at the launch of CMG and Alderwood’s STOMP Best Practice Guide which took place at Church House, Westminster.

STOMP (Stopping the over-medication of people with learning disabilities and autism) is a national NHS England campaign which was launched last year due to the high numbers of people with learning disabilities, autism and challenging behaviours being over prescribed anti-psychotic medication as a form of ‘chemical restraint’ for their behaviours and the devastating consequences this can have.

This influential event which was organised by CMG and hosted by Norman Lamb MP was attended by over 120 clinical experts and industry professionals.  Norman spoke about the fact that over medication of people with learning disabilities was a breach of their human rights. Speeches were given by NHS England representatives Anne Webster, Clinical Lead for the Learning Disability Programme; Dr David Branford, Pharmacists Adviser to the NHS England STOMP programme; and Carl Shaw, Learning Disability Adviser. Together, they highlighted the importance of co-production and involving experts by experience.

Norman Lamb presents at CMG's STOMP event
Norman Lamb presents at CMG’s STOMP event

Relatives of Alderwood’s* service users, who featured in the ground-breaking Channel 4 Dispatches documentary ‘Under Lock and Key’, gave emotional accounts of the devastating impact that over-medication had had on their loved ones who had been locked up in Assessment and Treatment Units (ATU’s) after being sectioned under the MHA. They also spoke of the amazing autism specific, person centred, low arousal care they are now receiving at Alderwood and how this has changed their lives completely. As one relative said ‘the difference is like night and day’. Their loved ones are now enjoying life to the full and one individual had even got himself a voluntary job.

Other families, who still had children in ATU’s, spoke distressingly about the awful side effects that the over medication and sedation was continuing to have on their loved ones and the complete lack of Autism specific care that was available for these vulnerable children and adults.

Stuart Polman, who is a Registered Manager at one of CMG’s 120 services, also gave a presentation, providing a first-hand account of how the service and the change in non-drug methods has transformed a service user’s life.

CMG’s service user drama group, The Brelade Players, also gave a highly entertaining dance performance of their interpretation of STOMP.

CMG’s STOMP Best Practice Guide examines the success of non-drug methods of treatment and the need for autism specific care, as a way of managing challenging behaviour, rather than the reliance on the use of psychotropic medication.  The Guide is based on real examples of people it has supported in CMG and Alderwood*.

*Alderwood is a subsidiary of CMG

You can see a copy of CMG’s Best Practice Guide here.

Here are just some of the quotes from family members that were presented at the conference.

“My son could hardly stand. The nurse in charge told me that if she gave him the next dose of medication, he would be in danger of going into respiratory distress.”

“My son is currently in an ATU, but I have him home every weekend.  In hospital, they administer PRN and use restraint. Although I have no support and am a single parent, I have never had to do these things.”

“Seeing my little boy, only just 13 years old and mentally age five, slumped in a chair, falling in and out of sleep while I wiped the drool from his chin… I will forever have nightmares over seeing such distress.”

“For the last 8 years, E has been injected with Clopixol, a rarely used, controversial antipsychotic medication, as well as other anti-psychotics. And yet, he is not mentally ill. He has autism and learning difficulties.”

“S was put on Risperidone. His weight more than doubled (13 stone to 29 stone in six years). His liver was failing. There was no difference in the severity of his meltdowns pre -, during and post- medication.”

CMG's STOMP event at Church House Westminster
CMG’s STOMP event at Church House Westminster
Parent, Isabelle, presents at CMG's STOMP event
Parent, Isabelle, presents at CMG’s STOMP event
CMG's Brelade Players
CMG’s Brelade Players perform at STOMP event

Sports Ambassadors will promote healthy lifestyles!

26th May 2017

I am really pleased this week to announce the launch of our innovative Sports Ambassador programme.  You may already know that CMG invests heavily in promoting healthy lifestyles and has launched a number of key initiatives in previous years around this.  Not only that but our Clinical Director, Michael Fullerton, organises an annual Athletics Championship which is a hugely successful event whereby service users and staff can take part in a whole host of sporting activities from sensory wheelchair races to basketball and javelin!  In previous years we have also had Olympic or Paralympic athletes hand out medals to winners at this event.  Michael also organises annual football matches including the infamous ‘CMG England v Wales’ match!

The Sports Ambassador programme will see service user Ambassadors being employed by CMG to promote greater involvement in sports and leisure activities in CMG services.  Their aim will be to enhance the physical and mental health of staff and service users and educate them on how to achieve this.  They will also be responsible for organising sporting events and interviewing service users and staff on how they are progressing, using a motivational inventory tool. They will then report their findings to CMG’s management team to ensure continuous improvements.

So far we have employed two Ambassadors:  Tomas Cardilo-Zallo (The Green, Sutton) and Stephen Adamson (Warminster Road, South Norwood). Both Tom and Stephen successfully completed the FA coaching training with Tottenham Hotspur Foundation last year, play regularly for the CMG football team and are excellent role models for sports and fitness. We hope that their input, inspiration and passion will encourage others in CMG to be more physically active.

Depending on its success, we plan for the Ambassador programme to be rolled out to other regions in the future.  This is a great initiative and I’m really looking forward to hearing how it progresses.  We all know that living a healthier and more active lifestyle can add so many positive benefits to both our physical and mental health and wellbeing.

If you would like further information on this programme, please contact Michael.fullerton@cmg.co.uk.

Sports Ambassadors
Tom and Steven, CMG’s Sports Ambassadors!
Sports Ambassadors
CMG Sports Ambassadors Tom and Steven show off their new gear!

 

Positive Behaviour Support (PBS) strategies change lives and wins national award!

19th May 2017

Positive Behaviour Support (PBS) strategies change lives and wins national award!

I want to begin my blog this week by congratulating Lynsey Way, CMG’s Positive Behaviour Support (PBS) Strategy Lead and Team Manager, who won the ‘Commended Award’ in the ‘Outstanding Practice in PBS’ category at the national BILD Leadership Awards this month. These awards recognise good practice in PBS nationally.

Positive Behaviour Support - CMG
Lynsey Way, wins Positive Behaviour Support Award

CMG’s journey with PBS started 4 years ago with the development of a PBS strategy which outlined key objectives around raising awareness of the complex needs of people with challenging behaviours in CMG. Other objectives included governance of restrictive practices and developing more intensive and targeted training for staff.

Since that time, we now have a PBS Team which consists of 5 full time posts under Lynsey’s leadership, who not only manage referrals in CMG and co-ordinate staff training, but also develop industry leading projects, just some of which include:

PASS+PORT, an exciting training pathway, which is currently undergoing BILD accreditation

  • Organising an innovative PBS Festival (a first for our industry) on 14th September in Surrey. I believe the tickets for this event sold out within a week, but if you would like more information, please contact lynsey.way@cmg.co.uk.
  • Actively engage in many local PBS networks as well as in national projects with The PBS Academy and Skills for Care.
  • Developing a quality audit for PBS to enable services to evidence how well they are doing at delivering and implementing plans.

There is so much more that I could say about the work that our PBS Team are doing, but perhaps the benefits of what they can achieve are best outlined in the lives that they change.  Here are just a few short case studies:

J – through focused understanding of her mental health needs, creating a versatile support plan and reducing demands at certain times, J’s staff team have reduced challenging behaviours by over 90%, J is a lot happier and has reduced the need for PRN medications completely.

P- through a change of environment to a quieter residential service which could operate at his pace, and some significant decreases in medication, P is no longer considered a person with challenging behaviour, he has some amazing outcomes thanks to the staff team and is loving life!

D- was finding it hard to transition to a new placement with us. Through increasing structure and visual information, and building rapport with staff at a pace he could manage, his transition is now back on track and progressing well.

Our PBS team live and breathe PBS in such a positive and engaging way. They also do a fantastic job in continually keeping energised the whole purpose of positive support approaches that increase quality of life.  The aims of which are that everyone we support: has plenty to do that interests them; are learning new skills; have friendships and relationships; have positive healthy lifestyles and can communicate effectively.

Where there is a good quality of life, there is less likely to be challenging behaviours.

 

 

Working hard to meet the sector’s recruitment challenges

9th May 2017

There are so many instances when I visit services every week where I see fantastic examples of staff ‘going the extra mile’.  So this week I want to concentrate my blog on all those staff who work so very hard, often doing extra shifts and overtime, to ensure the people we support are receiving good care.

This is particularly relevant given the huge recruitment challenges the social care sector currently faces.  With increasing Local Authority budget cuts and austerity measures we have been unable to achieve any significant fee increases for some years and this is a challenge faced across the sector. You will no doubt have seen much exposure to this in the news recently with startling headlines such as: ‘social care system beginning to collapse as 900 carers quit every day.’  What is not said however is that approximately 1,000 people join the sector every day and of the 900 people that leave, most go to work for other providers rather than leave the sector. The problem is not only about underfunding but ‘churn’ rather than turnover.

Whilst I wholeheartedly agree that the government needs to invest more money and resources into the sector, what is often overlooked, are the many benefits of working in social care.  It is an industry that you can join with absolutely no experience or qualifications and yet can be an outstanding support worker.  These people have the right values and the right attitude towards working with people who need care and support and they never fail to impress me. They are the people who shine and are often willing to ‘go the extra mile’ for the people they support, especially when we are short staffed, which has unfortunately been the case all too often recently.

CMG has invested many resources into giving these staff every opportunity to develop their  careers.  Our Learning and Development and Clinical Teams (who I firmly believe are some of the best in the industry) regularly deliver training sessions to enhance skills.  We also invest financially in supporting staff to undertake qualifications in social care.  As a result we have countless examples of employees in CMG who have progressed very successfully from Support Workers to Leads, Deputies, Team Leaders, Managers and Regional Directors.  There are few industries where this can be the case for people who initially join with no experience or qualifications (or indeed can be any age). Nor are there many industries where the reward of helping a vulnerable person improve their quality of life, is so great.

So my thanks go to all those staff who provide such excellent support in CMG on a day to day basis and especially those who are working particularly hard at the moment to cover shifts. I would urge all managers to make full use of our Employee of the Month scheme, Team of the Quarter scheme and Annual Staff Awards to ensure these individuals are individually recognised.

Social care - CMG
Staff working hard in social care

From no experience in social care to achieving great things!

5th May 2017

I know I have talked a lot recently in my blogs about our recent successes with CQC inspections, but this week I would like to acknowledge one of our managers, John Nicholson, who behind the scenes has been actively instrumental in some of these achievements. John’s story also demonstrates how someone can come into care with absolutely no experience and go on to achieve great things.

John joined CMG in June 2009 as a waking nights support worker with no experience in the care sector (he had a retail and hospitality background).  The ‘rest is history’ as John would say. He fell in love with the job and loved making a difference to a person’s life instead of looking at bottom line profits and targets. Through hard work, support from his manager (Amanda Sharp, now one of CMG’s Regional Directors), CMG training and completion of his Health and Social Care Diploma, John became manager at Kings Road.

Whilst at Kings Road, John was involved in the roll out of the new regulatory inspection process from CQC.  With a fantastic team behind him and a brilliant Deputy Manager (Sophie Hare, who is now the manager), Kings Road became CMG’s second service to receive a CQC ‘outstanding’ rating.

John then went on to manage a larger service, Chetwynd Road. Through identifying strengths within the team he made positive strides in driving the service forward.  Chetwynd also had another excellent  Deputy Manager in place (Lorraine Nash, now manager). Chetwynd has since gone on to receive CMG’s fourth ‘outstanding’ CQC rating.

Due to John’s continuing operational successes and his desire to seek new challenges and progress his career still further, we promoted him to Floating Manager in October last year, with a view to him providing management support to services which required additional help.

John has since done an excellent job of making improvements at our Cherry Tree service in Essex, which had previously been rated ‘requires improvement’ by CQC.  Not only did John and his team dramatically reduce agency usage but they also made a real difference in the result of our recent CQC inspection.  Cherry Tree is now rated ‘good’ in all 5 areas.  My thanks to John, his staff team and Natalie, the manager at 57 Bury Road, for their contributions.  I know John would also like me to thank his very understanding wife (also a lead support at Kings Road), whom he had to work 120 miles away from during this period.

There are always people in CMG who work extraordinarily hard behind the scenes, but I felt that John deserved special recognition.  It just goes to show that anything is possible with the right skills, support and dedication.   My thanks again to John and everyone else involved in the achievements made.

John can be seen in the photo below at the 2015 staff awards (in the purple tie)

John N

Another great Annual Achievement Award Ceremony for the people we support!

27th April 2017

I would like to dedicate this week’s blog to our Annual  Achievement Awards for the people we support, which took place last Friday evening.  I’m always so proud to attend all of CMG’s annual events as I think we do these so well and I know of no other provider that has an events calendar like CMGs.

This Award Ceremony is a particular favourite though as it is such a great celebration of achievements of the people we support.  The awards are treasured by those who receive them and often displayed proudly in an individual’s bedroom. Some services even have a special display cabinet to showcase all the awards they receive.  The awards give individuals a real sense of pride and in many cases increase their confidence to continue their achievements still further.

The Awards evening, which took place at Imber Court Sports and Social Club in East Molesey, starts with a 3 course meal and then we move on to announce the winners in each of the 12 categories.  Staff and family members of the finalists are also invited to attend the ceremony and join in the celebrations.

This year I was particularly struck by the really wide range of achievements that had been made.  I am also told that we had a particularly high number of nominations made in the education and employment categories which I was really pleased to hear as this has been a real focus for CMG.

For example, LM, who has learning difficulties and behavioural issues joined a mainstream college and has exceeded expectation. Now he attends the higher level maths class, joins in literacy, art, drama and dance.  When GC moved to CMG, she couldn’t read or write and was dyslexic. Staff acknowledged her desire to develop her skills and began to include reading and writing sessions in the shift.  As a result, GC’s reading, writing, and math skills have improved tremendously.  ST, who has Autism, does training for CMG and other organisations.  At the end of last year, ST presented to a conference of teaching professionals for 2 days in succession to approximately 350 people. He negotiated, and was paid a commercial rate for a speaker and was a great success.

Many individuals took to the microphone after receiving their awards and thanked CMG, staff at the service they lived in and often their family members for helping them accomplish their achievements.

It really was a great evening and my thanks to all those who attended.  Thanks also to every individual who was nominated for the Awards.  I’m told by the judging panel that there were so many worthy winners, that choosing a top 3 in some of the categories was incredibly difficult.

Here are just a couple of photos from the evening.

 

Achievement Awards
Achievement Awards for the people we support

Achievement Awards

CMG becomes the only major learning disability provider in England to achieve four CQC ‘outstanding’ ratings!

20th April 2017

Chetwynd Road in Portsmouth has become CMG’s fourth service to achieve an outstanding rating by  CQC.  It joins our Kings Road service in Hampshire, our Ridgeway service in Essex and our Avenue Road service in South Norwood.

We now have 95% of our services rated as either good or outstanding which is a great achievement.  Without doubt, this success is very much down to our excellent managers and staff teams who work so hard to ensure the people we support are cared for in an appropriate way and given every opportunity to achieve their goals.

Not only do these ratings put CMG well ahead of the national average but we are now also the only major learning disability provider in England to achieve four outstanding ratings.

Many congratulations to everyone at Chetwynd Road. By way of celebration I presented a hamper of goodies to them this week.

Lorraine Nash, manager at Chetwynd commented:

“Chetwynd had been going through a difficult time and lacked morale, but in a short time the team came together for the needs of the tenants. With some encouragement and valuing of each other, motivation was boosted.   The service is a large spirited house which requires organisation and routine. The team are very knowledgeable about the tenants which helps us to be responsive to their needs and make it a happy home.

One staff member suggested the morale has come from an enthusiastic management team who are happy to help in all aspects of the day.  I am very passionate about both staff and tenants and I am  fortunate to look forward to each day.”

CMG’s Welsh services are inspected by CSSIW. All CMG’s Welsh services currently have ‘no requirements’ for improvements.

I know that we have many CMG services who are working really hard to achieve an outstanding rating and I would like to thank them also.

CQC Outstanding
Chetwynd Road gets fourth CQC Outstanding

 

 

Purple Day for Epilepsy and Employee of the Month

31st March 2017

Purple Day is an annual day to raise awareness and raise money for Epilepsy. Many of our services support people with Epilepsy and many hold events on Purple Day.  This year it was on 26th March and I spent part of the day at Vallance Gardens in Hove. They did a fantastic job of organising an excellent Purple Day.  Service users wore purple and the house was decorated with purple balloons and drawings.  The deputy manager, Joan, had approached many local businesses and asked them to donate raffle prizes such as; restaurant meals, treatment vouchers and luxury soaps. She also asked many local shops to put up posters to further raise awareness.  Well done to the manager and all the team at Vallance who made this such a great day and to any other service that celebrated Purple Day.

Epilepsy is a complex neurological condition, and 1 in 5 people with epilepsy have a learning disability (20%).  Epilepsy is a tendency to have recurrent seizures that start in the brain.  Anyone can develop epilepsy, at any time of life and it happens in people of all ages, races and social classes. There are around 600,000 people with epilepsy in the UK, so around 1 in 100 people.  Most seizures happen suddenly without warning, last a short time (a few seconds or minutes) and stop by themselves and will present differently in each person.  It is often a lifelong condition, with frontline treatment being anti-epilepsy medicine and maintaining a healthy lifestyle.

CMG currently support around 200 people with an epilepsy diagnosis, and benefit internally from specialist support and training from our learning disability nurse trainers and clinical nurse trainer who is qualified in the Post Graduate Cert in The Epilepsies.  They also facilitate CMG’s Epilepsy Special Interest Group.

I also visited Hawthorn Crescent this week to present Sherrie Durrant, a Support Worker, with a cheque for £100, as she was the winner in last month’s Employee of the Month competition.  This is such a great scheme and is an excellent way of recognising some of the fantastic work our staff do.  It is always such a pleasure presenting these awards in the service.  Don’t forget this scheme runs every month, and as of this year, we are also introducing a Team of the Quarter scheme. The winning team will receive a visit from me with a hamper of tasty goodies!

Purple Day - CMG
Purple Day for Epilepsy
Purple Day - CMG
Purple Day for Epilepsy
Purple Day - CMG
Purple Day for Epilepsy

 

Focus on support for people with profound and multiple learning disabilities

24th March 2017

I would like to focus this week’s blog on services for people with profound and multiple learning disabilities (PMLD).  Quite rightly in the learning disability sector there is a strong focus on supporting people who present challenging behaviour and the importance of positive behaviour support.  However I am concerned that very little attention is given to the needs of people with PMLD and very little is talked about regarding best practice in this area.

We support a large number of people with PMLD in CMG and generally do it very well. Two people who are critical to our expertise in this area are Katie Reid from our Clinical Team and Erren Wheatland from our Learning and Development Team.  They both have huge expertise in supporting people with very complex health as well as learning disabilities.  I popped into the training session they were running this week on sensory stories.  There was a very positive atmosphere amongst the staff and it was a fun and very informative session.  Sensory stories are a really good way of engaging people with the most profound disabilities.

I carried out a social inclusion audit at Chandon in Ashtead this week, which is a supported living service, supporting 4 people with profound disabilities.  The audit scored very highly and the people living there had a really good quality of life with lots going on and a very person centred ethos.  I was particularly impressed that the manager, Kitty McAvoy, is looking to help one of the people who lives there to find employment. Kitty has been with CMG for 5 years and has worked her way up from a Support Worker.  I am hugely impressed with her dedication to the people that she supports.  I have known the individuals at Chandon for many years as they used to live at the Ethel Brady Close NHS campus which I was responsible for managing back in my NHS days.  The change in quality of life for those individuals since they moved to Chandon has been huge.

I was asked to attend a manager’s meeting this week because the managers in a particular region wanted to raise a concern that I hadn’t carried out social inclusion audits in their area or celebrated the good work that they do. Since then I have carried out 2 audits in that region and will be carrying out more.  If any CMG manager feels that they have an example of best practise in social inclusion that they would like to celebrate, please let me know and I will make sure that I visit in the near future.

PMLD - CMG
CMG supports people with PMLD

Making pledges Drives Up Quality with real evidence of improvements!

15th March 2017

Making pledges Drives Up Quality

In this week’s blog I would like to focus on the Driving Up Quality (DUQ) initiative.  The government and leading organisations, like CMG, launched the DUQ Code in 2013 to set out 5 key standards for learning disability care.  These include things like ‘focusing support on the person’ and ‘supporting the individual to lead a meaningful life.’  The launch of the Code followed the atrocities and abuse that was discovered at Winterbourne View.

The purpose of the Code is for provider companies to ‘self assess’ their organisations against the 5 areas by gaining feedback from relevant stakeholders ie. people they support, families, staff, external professionals etc about how their company is performing.

I think CMG has organised some really creative ways of gathering this feedback.  In 2014 and 2015 we held company-wide self assessment days focusing more on points 4 and 5 of the Code around organisational culture.  Rather than simply ask people to fill out forms, CMG wanted attendees to give their views in an open and engaging manner, via a series of creative, accessible and fun workshops.  The feedback on what CMG could do better was then prioritised into key action points.

In 2016, we organised a series of ‘roadshows’ focusing on points 1-3 of the Code around supporting people to live meaningful lives. Members of CMG’s Clinical Team, Learning and Development Team and operational teams facilitated five ‘areas’ where attendees could get information, tools and ideas on five key themes identified as really important for the people we support.

These five areas are:

  1. Relationships
  2. Being out and about
  3. Being healthy
  4. Coping with emotions
  5. Employment

We then had a ‘pledge tree’ where individuals were asked to hang a ‘pledge’ of what they would like to achieve in one or more of the 5 areas.  We have had some fantastic achievements made as a result of these pledges.  For example: L pledged to lose weight and has since joined a slimming club and lost 3 stone!  A wanted to find a girlfriend and has since joined Heart Venture dating agency in Brighton.  N wanted to ensure she asked for help when she experienced painful emotions and now her keyworker uses pictorial cards to support her to express herself.

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We are now planning our activity for 2017 and will be running another series of roadshows, this time assessing ourselves around our company values.

More information on the 2014, 2015 and 2016 events, feedback and action plans can be found in CMG’s DUQ Reports.

Members of